65 pointsby gregsadetsky6 hours ago15 comments
  • darksim9055 minutes ago
    This page has so many dang scripts and the iframe doesn't do it any favors. I've allowed everything and it still doesn't load. There are far too few specialists that work on tinnitus and so many dental and ENT specialists choose to not take it seriously enough.

    I have high pitched 7k hz bi-lateral ringing, 24x7. I've had it my whole life. I am convinced part of it is due to being born very premature (I was 1 lb 11 1/2 ounces). I believe it may be cervical and/or neurological (vascular, specifically).

    It's so frustrating because nothing has happened. Masking only does so much. Sitting around reading a book, or trying to sleep is almost impossible.

    I've been wanting to make a documentary style video on this diagnosis/issue, because a more people suffer like this than people realize. One medical professional that was helping me passed away a few years ago and that still eats away at me, because he really cared that he wasn't able to help me and it ate away at him. I still miss him.

  • cogogo2 hours ago
    Over the years I have seen a few threads on tinnitus. I have it very mildly and doesn’t bother me much. On the other hand I have had “floaters” in my eyes since I was a teenager (probably just when I noticed them). Until I saw a doc I thought I was going blind but apparently they run in my family. They are like visual tinnitus and my god do they drive me crazy. I find wearing sunglasses helps me ignore them but they can be brutal. I am a big skier and in flat light they drive me bonkers. Not sure I have seen these discussed here but maybe I missed it.
    • ColdStream43 minutes ago
      As someone with both as well, yeah they are there but really they don't bother me.

      I cannot change them so I don't worry about them, they are just little my little floating jelly blobs friends that visit when I am at my computer.

    • cataphract26 minutes ago
      I have both as well. Floaters are mildly annoying, but at least when you lie in bed at night you don't see them in the dark.
      • jwrallie2 minutes ago
        There is also visual snow syndrome to keep you company at night.
    • ysaviran hour ago
      I've had them all my life. I remember watching a some video a few years back that said they're more noticeable against a bright/white background, which checked out with my past experiences. And judging by your skiing comment, probably for yours as well!
    • Barbingan hour ago
      That stinks, sorry to hear.

      It's mentioned when tinnitus comes up, or when dark mode isn't available. Couple months ago, someone recommended a supplement that it seems could easily(?) be DIY'd in case it's snake oil (even if it's more expensive, then they don't "win"!) :)

      https://hn.algolia.com/?dateRange=all&page=0&prefix=false&qu...

    • baggy_trough41 minutes ago
      I have the same problem. Some good mitigations are dark mode on the computer and using very dark, yellow/brown alpine sunglasses in bright sun.
  • zelphirkalt7 minutes ago
    I don't even know why I have tinnitus. It's not end of the world bad tinnitus, but sometimes does get a little annoying. It is louder in the evenings/nights than in the mornings. I have it since primary school 4th grade or so, when I realized I have it, because an old teacher described her own tinnitus. But as far as I can remember there was no very loud sound event before that causing the tinnitus. Maybe it comes from bad posture or so, already in primary school. Too heavy school bag with too many books? Who knows. Have had it ever since. Most effective masking method for me is sound of rain whitenoise like that rainymood website.
  • Geeean hour ago
    I have had occasional tinnitus, and once it lasted for a few months and then went away. Sometimes it appears suddenly, and I've taken vitamin B12 and magnesium and it goes away in a few hours. Vitamin D might also help according to some studies, but in my case I think it might make it worse. Not sure if placebo or not.
  • Sindisil2 hours ago
    It's almost certainly my own damn fault I have it, but after at least 35-40 years dealing with it,tinitus sure as hell isn't my friend.

    Mine is high pitched, and varries in intensity but has gotten worse lately. Sometimes it makes jus existing down right hard, but usually it's only moderately annoying and I can mostly ignore it.

    I've tried an assortment of sound based methods to mask it or train my brain to tune it out, but nothing has worked more than fleetingly.

    The only thing that reliably gives me a break is if I can really focus on something. Music (passive or active), cooking, and programming are the most reliable, but sometimes reading, gaming, or good conversation works. Usually, though, everything is done with a constant backing track of flyback transformer whine.

    Wear hearing protection, kids, or you may well live to regret it!

    • fowlie42 minutes ago
      Amateur musician with mild/moderate high frequency tinnitus here. I was treated with exposure therapy, and while I hear the sound (less now than before) it doesn't bother me any more. I would recommend a book called "Living Well With Tinnitus". Good luck!
    • cheschirean hour ago
      I remember about twenty years ago reading a method on a forum somewhere for dealing with tinnitus to create temporary relief. Many folks claimed to experience relief from trying it. Maybe it will help you?

      It was text back then but nowadays there are videos. Here's an example: https://www.youtube.com/shorts/YyT9ZwWy5Jc

    • 27183an hour ago
      I developed tinnitus in my right ear about 5 years ago. I remember exactly when it started. I was welding up a tailpipe repair on my car, and in the next bay over my brother was running the lawnmower to adjust the carbs. The exhaust was basically blasting directly into my right ear from a distance of about 10ft. I don't recall it feeling excessively loud at the time, but afterwards for about a two years I had really bad occasional ringing and occasionally I could hear "rushing" sounds very loudly.

      About 3 years ago I used a borescope and some tweezers as a sketchy endoscope and pulled out a hair that had somehow wedged itself in my ear canal. I don't recall how I figured out this plan, but it worked. The tinnitus has never returned since then.

      I have no idea whether there's any causal connections between any of these events. It's a big mystery. But TBH I don't really care that much, I'm just super glad it's gone.

    • Barrin92an hour ago
      >tinitus sure as hell isn't my friend.

      what the author is advocating for "befriending tinnitus" is a well established form of therapy (Acceptance and Commitment/ACT), it's generally very effective because avoidance or compensatory behavior ("trying to make the tinnitus go away / distract myself") is teaching the brain that tinnitus is a problem and is only going to increase the kind of alertness that leads people to focus on their tinnitus. It's the same way with insomnia, people who try to produce sleep efforts tend to worsen their insomnia, you need to befriend being awake.

      There's a big psychological component to tinnitus that sustains itself because people view tinnitus as a problem, that's often larger than the physical impairment.

  • aappleby3 hours ago
    I've had tinnitus for 25+ years after neglecting an ear infection while I was working overtime.

    It's never disappeared, but the "rain on a tent" sounds from mynoise.net, fan noise, and having a Twitch stream on in the background masks it enough that it's not bothersome during the day.

    "Befriending" it though? Naah, I don't think so.

  • y1n02 hours ago
    of course even reading a thread on tinnitus makes mine worse. The mere fact of paying attention to it makes it worse, so I have a hard time seeing how a drug is going to help much. I do wish there was something.

    Ostensibly mine is from high frequency hearing loss, which I absolutely have, but I now wear hearing aids and it has no measurable impact from my point of view.

    I take comfort in that I can go long periods of time without noticing it, and I know that even though I'm focused on it now and it's loud, it will slowly drift to the background and below conscious notice before too long.

    I certainly don't befriend it, but I when I notice it, I acknowledge that I notice it and move on with whatever I'm doing. Eventually I'll notice again, days or weeks later and realize I hadn't noticed it at all in the intervening time. So I just relax and move on.

  • ed_merceran hour ago
    My dad has it really bad because he worked in a nightclub in his twenties. He would say it's like a jumbojet idling its engines nearby, all the time. It's thanks to him that I started taking ear protection seriously.
  • viburnum41 minutes ago
    It took a while but this worked for me (no gimmicks either)

    https://www.youtube.com/watch?v=1vOHoeRYxBI

  • A_D_E_P_T3 hours ago
    Yeah, that's nice and all, but people suffering from tinnitus will tend to get downright angry when you tell them: "Just change your attitude to it." There's nobody with tinnitus who hasn't heard it 100x already. And it's not that easy.

    It's unfortunate and surprising that there's still no effective drug, though lidocaine does, in fact, work. (Very temporarily, sadly.)

    And time does help, at least sometimes. Over the past ten years, my tinnitus has gone from a 5/10 (highly annoying and noticeable above ambient noise, but not debilitating in any respect,) to something like a 1/10 (I don't even hear it unless I'm in an extremely quiet room and trying to sleep).

    ...But it sure ain't my friend, and never will be. It's hard to interpret it as anything but an annoying side-effect of self-inflicted nerve damage.

    • gerdesjan hour ago
      I've had it all my life. I'm 55. Mine is bearable and generally I don't notice it. Mine was caused by "glue ear" or more likely the operations to "cure it", which caused ear drum scarring and what not. I don't think that glue ear is a modern diagnosis anymore. Mind you doctors were only beginning to not advise people to smoke for their health in the early '70s.

      I know what a variety of tinnitus is like (I've never known anything else) and I'm sure that other varieties can be horrendous. In my case time does not help.

      Perhaps we ought to insist on a tinnitus spectrum, with multiple dimensions and some TLAs. I don't think that advice from a single data point is very helpful, or being charitable: annecdata. I'm glad it disappeared for OP.

      Tinnitus ranges from, say, me (I'll live) through yourself (fuck! but I'll live) to committing suicide in despair at the extreme end.

      • runeb19 minutes ago
        Wow, I’ve had it for 15 years and until now I’ve never thought it may be connected to also being «treated» for glue ear as a kid. Do you have more info on this and how you came to that conclusion?
    • someguyorother2 hours ago
      > It's unfortunate and surprising that there's still no effective drug, though lidocaine does, in fact, work. (Very temporarily, sadly.)

      There's some research, but yeah, I'm surprised that something that affects so many people and in some cases affect them very severely isn't receiving more attention.

      At least there are things one can do immediately after the fact to limit nerve damage (applying intratympanic steroids etc), but even these things are often missed and haven't become part of routine procedure yet.

      And I'm very curious why Shore's device is still stuck in FDA hell while the (from what I've heard) inferior version, Lenire, passed a long time ago.

    • zdragnar2 hours ago
      30 or so years here, still 5/10 after all these years. I don't let it bother me for the most part, but it'll certainly never be anything but a negative thing.

      I'll be honest, this is the first time I'm hearing "just change your attitude towards it" though. It's like the terrible advice someone with depression gets- just be happy!

    • an hour ago
      undefined
    • emptysongglass2 hours ago
      I mean people with tinnitus can choose to get angry about it or they can... change their attitude toward it.

      I have it. I've changed my attitude toward it and made it my friend. I don't really know what else to tell you, but if you want to, the way is open for you. Or you can continue to see it as an aversive thing, and it will continue to be so.

      • ColdStreaman hour ago
        Yeah, I know people don't like that message, but yeah... just accept it.

        No amount of wishing it away is going to make it vanish in the same way if I really want to fly I just need to think I am a bird... at least in theory. ;)

        It doesn't mean you have to be happy with it but just accept it, bring it out like a photo album of the family. 'Here is my tinnitus, it stays past its welcome but keeps me company.' 'There is my balding, society considered it ugly, I think it is just neat.'. 'Oh the knee that wants to play up every once in a while, yeah that happens, we work with it the best we can.'

    • massysett2 hours ago
      Meh. My tinnitus is a result of high-frequency hearing loss. The hearing loss is not noticeable - maybe I can't hear something just below what dogs can hear? - but the tinnitus is noticeable.

      I have no idea how it happened - I never used headphones much, I don't work around machines or jet engines, etc. One doctor said it's just wear and tear.

      It doesn't bother me though. I figure that nobody has a full stack of bricks when it comes to health, and here's one of the places I'm short. Compared to some of the places where other folks have health problems, this is not a biggie.

    • firebot2 hours ago
      There's surgery...
      • A_D_E_P_T2 hours ago
        IIRC it's only for a specific, rare variant, though?

        There's also that surgery where they sever your auditory nerve and render you deaf. Some have done this in an extreme last-ditch effort to cure their tinnitus. Sadly, it doesn't always work -- many of those who tried became deaf and yet remained stuck with tinnitus.

  • 3 hours ago
    undefined
  • crooked-v43 minutes ago
    For people looking for treatment for long-term tinnitus, notched sound therapy has been statistically shown to help by reducing brain activity in relation to the perceived tinnitus frequencies (https://pmc.ncbi.nlm.nih.gov/articles/PMC8832119/). In other words, it doesn't go away, but it becomes less "important" to the auditory centers.

    There are various professionally provided therapies of this style, but there are also simple self-therapy apps that find the perceived frequencies and then play white noise or a music library with the sound adjusted to produce the notched effect in that small frequency window. For example: https://audionotch.com/ https://www.tinnitusnotch.com/ https://www.tinnaway.com/

  • 3 hours ago
    undefined
  • ashton3143 hours ago
    If you do not already use MyNoise to help you focus at work, then, like, what are you even doing? Sometimes I'll listen to music of various kinds if my work isn't too deep, but whenever I need to concentrate deeply on a problem, MyNoise will have the perfect noise blocker. Go explore the site. It's a lovely little corner of the "classic" internet: no ads, no shenanigans, just this one dude making a technical masterpiece that you can enjoy.
  • firebot2 hours ago
    The post beneath this one is titled:

    How Golden Is Silence, Actually?

    • owlninja18 minutes ago
      This is a funny but sad coincidence! I'll chime in the same as others, I've had tinnitus for 20+ years and I know it is all due to one event. Somedays if I am tired or stressed it gets worse, and then some days I have so much going on I don't think about it (much). But sometimes when I have a calm moment or if I am on vacation trying to relax, I really have no idea what silence sounds like anymore.