220 pointsby bundie4 hours ago29 comments
  • rdtsc3 hours ago
    > The company plans to grab four categories: your sleep, your medications, your medical records, and your cycle tracking details

    So you buy a device but you can't effectively use half of its features because you'd also have to agree to send them your medical records? Ok then if I refuse, will they refund 50% of the device price since now it's not usable any more?

    • benjiro292 hours ago
      If your in EU, you contact the local EU consumer group where you buy the device.

      https://www.europe-consommateurs.eu/en/who-we-are/about-us/e...

      And file a complaint... As that breaches a dozen or more EU laws. If a lot of people do it in all the countries, it becomes a national issue.

      That is the only way you fix things, and yes, we have had multiple successes with companies taking the piss. Even Samsung can not escape as their have officies in the EU and sell products there.

      For the folks outside the EU, ... Its a harder fight and you need to look up your local agencies.

    • skeledrew8 minutes ago
      Buying a device doesn't mean vendor-hosted services are included, unless explicitly stated. This is the kind of thing why they can get away with taking unsolicited actions on people's devices whenever they want. CUT THAT CORD!
    • andy99an hour ago
      I had a ~2008 vintage Samsung phone with a fingerprint sensor that gave your blood oxygen level (SpO2). One day it told me something similar, I had to agree to send them data or I couldn’t use it. So I never used it again, but yeah they have been abusing their costumers a long time.

      This is they same company whose tvs take pictures of what you are watching and send them back to Samsung.

      • wolvoleoan hour ago
        Every TV does that unfortunately. It's called automatic content recognition but every manufacturer has a different euphemism for it.

        It's definitely not just Samsung. As bad as this is. The problem is bigger than just them.

    • sam1r2 hours ago
      [flagged]
      • JoshTriplett2 hours ago
        > I really feel like "grab" is quite condescending

        By all means, let's use a more appropriate term, like "abuse" or "misappropriate". It's not sufficiently condescending for a company that's trying to train AI on people's private health data.

        • mcmcmc2 hours ago
          Do you think those services are “free”? If you want cloud storage and syncing, it comes at a price. If you’re not paying with money, you’re paying with your privacy and freedom.
          • aftbit2 hours ago
            I sorta assumed they were making money from selling you the device.
          • JoshTriplett2 hours ago
            We are not required to permit every possible business model to exist. Companies are desperately trying to get their hands on every piece of data they can get to train AI, hence the abominable use of "opt out", which is already horrible even without the added bait-and-switch coercion of "or we'll make the device you already purchased worse".

            "pay or consent" stunts have already been ruled illegal under the GDPR. This goes even further than that, where you don't even have the option to pay.

      • BigTTYGothGF2 hours ago
        > condescending

        How can you be "condescending" to a company?

        • ben_w2 hours ago
          Same way as towards a natural person, I recon?
      • Barbing2 hours ago
        Samsung can mitigate the harm and frustration by providing users options. Would you prefer this pathway of their way or the highway?
      • ben_w2 hours ago
        > I really feel like "grab" is quite condescending to a company (Samsung) that provides services at scale (upon/after consent) to help you.. "be better" (simplified..), with direct customization and tailoring.

        The headline as described sounds to me like they're violating GDPR by tying to force "consent" for a not-strictly-necessary-for-functionality use of health data. The European Data Protection Board has repeatedly stated that consent is (generally) not considered to be "freely given" if there is a significant detriment for refusing it or if the user has no genuine choice.

        Note however that caveat: as described. There may be some more details which make this not unlawful. Also, actually deleting your data if you don't consent is the kind of thing GDPR requires.

      • customguy2 hours ago
        "snatch with their spider leg like fingers that are dripping with digestive fluid"
  • sunaookami2 hours ago
    Bought a Galaxy Watch 7 two years ago, the hardware is good and One UI on the watch itself is also quite good (and the last major update improved it) but Samsung Health is such a shit app. Constant ads for some "courses" or videos and things I don't care about. Downloading my personal data doesn't even work, it sends me right to the browser with an error message that I'm "not logged in correctly" and it wants access to all my pictures & videos (seems like a wrong permission prompt there but when I decline it it also fails with "we need access to all your photos & videos". Why? Just send me a download link via email or use SAF and let me pick a download location).

    Thanks to this article I also noticed the UI was redesigned. At least I could keep my layout but it didn't work like it should, it added some useless cards. It also asked about new "optional" data sharing which I of course declined. There is now a notice that my data wasn't backupped to my Samsung account the last 3 days (???) and the data synchronization doesn't work, the buttons do nothing, it just says "disabled" even though everything is enabled... typical Samsung shitware. Haven't noticed anything with AI training (there is no option) but I'm also in the EU.

  • aleph_minus_one2 hours ago
    Where is the catch? You rather get two good things if you don't agree:

    - Samsung deletes your sensitive health data

    - Samsung does not use this data to train some AI

    :-)

    • orbital-decay2 hours ago
      The catch could be they actually do neither of that and train on it silently.
    • delduca2 hours ago
      I was thinking exactly the same…
  • gmuslera2 hours ago
    In some way they are telling that they respect your privacy. Or they have your data (and then do something with it, now or later), or no one will.

    They could provide some Google-style takeout to get your data before deletion, but that may not have any meaning or practical use without their devices and software.

    • vitally36433 minutes ago
      They don't respect your privacy, they value your private data. Two very different things.
    • sam1r2 hours ago
      Completely agree. Or maybe, just like most products in tech -- they are currently en route to "take out" style data deletion... and it's being released shortly.
  • gardnr2 hours ago
    This is like Google Ultra for personal accounts. I signed up to see what it was like and then assumed I would be able to disable training on my data as a paid customer. The only way to disable training on paid personal accounts is to disable history (no chat logs) which makes the service much less useful for me.

    For Google Workspace accounts that use the Ultra plan you can disable training while retaining history. I didn't bother signing up again. It is user-hostile.

    • cute_boi2 hours ago
      Yes, you will have to pay lot of money and you will have to surrender data too.
  • skeledrew14 minutes ago
    This actually seems kinda OK. Consent to train is payment for hosting that data. Find another health app/service with more preferable terms if you don't like it. My only beef is if they do an immediate delete without providing a reasonable method for users to export that data first, which is how it reads.
  • gdulli3 hours ago
    Something I appreciate about Samsung phones is that having a Samsung account is completely optional. I've never had one. If I accidentally click on one of the dumb AI features I'm not even allowed to use it without an account.
  • datadrivenangel3 hours ago
    shouldn't this get them turbo obliterated in europe?
    • seydor2 hours ago
      no, in fact gdpr requires that they get consent before they process the data.

      They are not preventing people from accessing the data, only indefinite storage as i understand. They may claim that storage is needed for the processing (which might make sense, they want to train on the whole time series).

      • ptx2 hours ago
        Recital 11 of the GDPR says that consent must be "freely given", and recital 43 says (in part):

        "Consent is presumed not to be freely given if it does not allow separate consent to be given to different personal data processing operations despite it being appropriate in the individual case, or if the performance of a contract, including the provision of a service, is dependent on the consent despite such consent not being necessary for such performance."

        • 2 hours ago
          undefined
      • wolvoleo2 hours ago
        Yes but that consent must be given freely. There can't be undue pressure. Unfortunately this part is not well defined but it looks like the AI training part is not required to deliver the service to the specific user so I do think that if challenged it will be ruled afoul of GDPR.
        • abroszka332 hours ago
          I think Facebook lost a similar lawsuit recently where you had to accept that they can use your data or pay to access the site. And it was found illegal in the EU.

          The problem is that it takes years and users don't wait for years. There should be a way to harm these companies more on the EU level.

          • antalis2 hours ago
            They can get fined for up to 2 or 4% of their global annual revenue depending on the violation severity.
      • varispeed2 hours ago
        Indeed, gdpr was created for corporations to have legal basis to process and sell data. Before gdpr it was a gray area. It was never about privacy.
  • makeramen39 minutes ago
    Gemini does the same (though not with health data). The only way to opt out of training on your data is to disable all Gemini chat history.
  • qmarchian hour ago
    I use a Watch 6 Classic, just went in to find this toggle. Doesn't seem to exist in the Japanese market at least.
  • kklisura2 hours ago
    One day we will perhaps be able to forgive these companies for mismanaging our data, but we will never forgive them for making us regulate them.
  • sam1r2 hours ago
    I was under the assumption that because of GDPR (which is in effect..).. or current "end-user metadata storage" best practices.. if you (a website/or app) didn't immediately disclose to the user what data is being used,stored, and why it is -- then you shouldn't store it at all.

    If you agree that the world needs better examples today, then Samsung has definitely showed one.

  • vcryan2 hours ago
    Yes, please - delete my health data. I want my health data - I didn't want Samsung or anyone else to have it unless I provide it. And even then, you can't keep it - you can look at it. It's mine.
    • garbagewomanan hour ago
      You’re hoping that they will do what they say
  • Madmallard24 minutes ago
    How does this not violate HIPAA?
    • arjie3 minutes ago
      How is HIPAA relevant here? Samsung isn't a covered entity. HIPAA is not just "I have some health data" freebie. Might as well ask why it doesn't violate Sarbanes-Oxley or Jim Crow.
    • codingdave17 minutes ago
      Because HIPAA only applies to specific people and organizations who have a formal role in your health care. It is not a universal law applicable to everyone, and Samsung is not your healthcare provider, insurer, nor part of any related entity.
  • tamimioan hour ago
    I actually don’t know why people are always surprised when this happens, it’s not your data anymore no matter whatever regulations are there. The other day I reactivated my apple music to get a specific shazam song (I don’t use it anymore or any SaaS for that matter, have my navidrome server for years), but little to my surprise, all my playlists and songs are gone, deleted, everything as if it’s a new account! I thought it’s a glitch and googled it, turned out there are a LOT of people who had all their years of music wiped out for not having the subscription for two weeks only.. so yeah, always own your stuff, especially if you pay for it.
  • zelphirkalt2 hours ago
    That reminds me of a story by a former coworker of mine, who had a xing account and repeatedly asked them to not send me him ads and spam e-mails. They ultimately closed his account.

    Some companies are so dead set on doing this shit, that they don't even have mechanism in place that would enable them to act upon you opting out. It is a sign of dysfunctional companies. You can also observe this, when you send companies a GDPR request for deletion and they do eeeeverything to not have to go into their shitty system and delete the data, because that would require them to do manual work.

  • ThePowerOfFuet2 hours ago
    What's with the tracked sharing link?

    Tracking-free link: https://www.neowin.net/news/samsung-will-delete-your-health-...

  • varispeed2 hours ago
    Samsung should be fined out of existence for this.
    • cute_boi2 hours ago
      Well there is no incentive for government to keep citizen data private.
  • kelseyfrog3 hours ago
    Am I reading this wrong? It sounds like, short of self-hosting your health data, this is the best of both worlds. Avoiding zombie data retention and avoiding AI? Where do I sign?
    • ribosometronome2 hours ago
      Blocking backups and consequently reducing data portability doesn't really sound like the best of both worlds.
  • stackghost2 hours ago
    >You will not be able to sync health data with your Samsung account and your health data will be deleted unless retained pursuant to applicable law. If retention is required, we will erase it as soon as the required retention period ends.

    Don't threaten me with a good time.

    I'm so tired of tech companies shoving AI into everything, everywhere.

  • theturtle2 hours ago
    [dead]
  • breakingrules32 hours ago
    [dead]
  • breakingrules32 hours ago
    [dead]
  • exabrial2 hours ago
    I'd doubt this is legal under HIPAA law in the US, but good luck
    • Hugsbox2 hours ago
      I'm not an expert on the matter, but to my knowledge Samsung aren't health practitioners and aren't beholden to HIPAA laws for data that was (presumably) voluntarily provided to them. Is this scummy? Abso-fucking-lutely. But as far as I'm aware they have a lot of freedom when it comes with data collected with permission from users. Obviously this is something that should be addressed/regulated.
    • fwip2 hours ago
      It certainly is. HIPAA binds healthcare providers and those entities who get data from them. Samsung is not bound by either of these, unless it is sourcing the health information from, like, your doctor, and not from your watch.
  • josefritzishere3 hours ago
    You shouldn't trust them with your health data anyway.
  • dotcoma2 hours ago
    They are dumber than a second coat of paint.
  • swiftcoder3 hours ago
    Are we sure this isn’t the text for the “consent to process health data” toggle that is on the same screen? I don’t have a Samsung phone handy to check
  • Cider99863 hours ago
    Apple has default E2EE on health data, which I respect. But they need to take iMessage backup out of Advanced Data Protection and make it default E2EE. Messages are just as sensitive, iMessage is effectively not E2EE if most users are using it with server-side encrypted backups to iCloud. Apple of all companies should be able to make a reliable E2EE that wont cause data loss.