If another member of the family get's sick, is it possible to transfer the group? It may have like a 90% overlap.
> Is this a medical record organizer?
I'm not sure if HIPAA applies, but you will have a lot of confidential information. Just be careful and ensure you are following all the regulations whatever they are.
> Walk into appointments knowing what to ask.
This is super important!!! Medical doctors need like 10 years to get their knowledge, perhaps more. The patient+family only has a few weeks. I think it's important to do your own research mostly to "know what to ask". (Out there is full of misinformation and crap, from weird pages in all caps with white letters on a black background to polished pages in universities full of over hype about a success case in one mice.)
I'll add somewhere "Get a second opinion (by a real serious medical doctor, not a random idiot)."